By Leslie - I am in pain. Severe debilitating pain. I cannot describe it to you. It’s in both sides of my face. It’s like having a severe toothache in every tooth and in the bones of my face. Even my nose is hurting. This all began back in 2014 when I had my bottom … Continue reading Life with Trigeminal Neuropathy
By Winslow - Headaches can come in various different forms. Tension headaches, sinus headaches, menstrual migraines and cluster headaches are just a few examples of these debilitating demons that plague a great deal of people. It is estimated that 13% of Americans suffer from migraine headaches which calculates to around 38 million people. It is … Continue reading Migraine or Cluster: Which Are You Having?
By Wanda - You would have to sit in on an appointment with my awesome neurologist and me to understand the differences between rice cereal, rice pudding, sticky white rice, and what they have to do with a brain. Every once in a great while, after seeing countless doctors, you might be lucky enough to … Continue reading Sticky Rice, Rice Pudding, Rice Cereal, & Your Brain
By Jeannette & Jorie - Every year in February, advocates for migraine and headache disease come together in Washington, DC for an event known as Headache on the Hill. HOH is organized by The Alliance for Headache Disorders Advocacy (AHDA), and has been running now for 12 years. During HOH, advocates of all kinds -- … Continue reading Voices from the Hill
By Wanda - Lets start at the beginning with the definition of “research”: 1. Noun - the systematic investigation into and study of materials and sources in order to establish facts and reach new conclusions 2. Verb - investigate systematically Remember doing research papers in school? In order to become our own best advocate, we … Continue reading Migraine & Headache Disease Research
By Abby (Guest Writer) - Dear Anyone and Everyone, So we’re a little broken. We know our situations are difficult, frustrating, inconvenient, and that you want to help us but might not know how. We know that your actions or inactions are well-intentioned. Above all, we know that this is confusing and makes no sense … Continue reading An Open Letter From a TBI Patient
By Greg (Guest Writer from Theraspecs) - Light sensitivity may as well be “Exhibit A” for why migraine is so much more than a headache. It is the second most commonly reported symptom after head-related pain and may affect as many as 90% of people with the condition. And let’s be honest: it can turn … Continue reading Light Sensitivity: A Real Pain for Migraine & Headache Disorders
By Jason (Guest Writer) - Males are the migraine minority. Women are 3x more likely to have migraines than men. Being a male with migraine, let me share a bit of my experience with migraines. First, let’s understand the numbers. Only 6% of American men suffer with migraines. Where 18% of American women suffer with … Continue reading Living the Minority: Life as a Man with Migraine
By Alexandria & Wanda - Our Stories Alexandria: The smell of smoke woke me in the middle of the night. I got out of bed fast, prepared to evacuate my apartment. I heard people talking and assumed that others were already leaving the building. When I got to the hallway, however, it was empty: there … Continue reading What it’s Like to Live with Hemiplegic Migraine
By Sarah Faith - How many of us have often heard of our migraines referred to as simply "bad or severe headaches." Commercials for migraine medicine, friends and family, even doctors perpetuate the idea that although sometimes severe, the migraine is simply a headache with the directly related symptoms. We ourselves, as migraine sufferers, often … Continue reading Why Migraine is NOT Just a Headache
